References for May 2024
5 Facts about palliative care in aged care
- Centre for Health Economics Research and Evaluation (CHERE). 2018. Palliative care in residential aged care: Identifying and funding palliative care needs in Australia. Available: https://www.uts.edu.au/sites/default/files/2020-04/ELDAC_report_1.pdf
- Galekop, M., M., J., Dijk, H. M. V., Exel, J., V., and Cramm, J. M. 2019. Views of professioinals and volunteers in palliative care on patient-centred care: a Q-methodology study in the Netherlands, BMC Palliative Care, 18 (97)
- World Health Organisation (WHO). 2020. Pallliative Care, Available: https://www.who.int/news-room/fact-sheets/detail/palliative-care
- Mitra, S., Vadivelu, N. (2013). Multidisciplinary Approach and Coordination of Care. In: Vadivelu, N., Kaye, A., Berger, J. (eds) Essentials of Palliative Care. Springer, New York, NY. https://doi.org/ 10.1007/978-1-4614-5164-8_2
- Hui, D., Hannon, B.L., Zimmermann, C. and Bruera, E. (2018), Improving patient and caregiver outcomes in oncology: Team-based, timely, and targeted palliative care. CA: A Cancer Journal for Clinicians, 68: 356-376. https://doi.org/10.3322/caac.21490
- Vissers, K., Brand, M., Jacobs, J., Groot, M., Veldhoven, C., Verhagen, C., Hasselaar, J., Engels, Y. (2012). Palliative Medicine Update: A Multidisciplinary Approach. In: The Authors Pain Practice. 2012 World Institute of Pain. https://doi.org/10.1111/papr.12025
- Victorian Government. (2016). Victoria’s end of life and palliative care framework. A guide for high-quality end of life care for all Victorians. Department of Health. Available at: hyyps:// www2.health.vic.gov.au/palliative-car
- Brett, L., Ilhan, E. The type and scope of physiotherapy is under-utilised in Australian residential aged care facilities: a national, cross-sectional survey of physiotherapists. BMC Geriatr 22, 625 (2022). https://doi-org.ezproxy.library.sydney.edu.au/10.1186/s12877-022-03248-4
- Navarro-Meléndez, A., Gimenez, M., Robledo-Donascimento, Y. et al. Physiotherapy applied to palliative care patients: a descriptive practice-based study. BMC Palliat Care 22, 99 (2023). https://doi-org.ezproxy.library.sydney.edu.au/10.1186/s12904-023-01188-3
- Carson K, McIlfatrick S. More than Physical Function? Exploring Physiotherapists’ Experiences in Delivering Rehabilitation to Patients Requiring Palliative Care in the Community Setting. Journal of Palliative Care. 2013;29(1):36-44. doi:10.1177/082585971302900106
- Pyszora, A., Budzynski, J., Wojcik, A., Prokop, A., & Krajnik, M. (2017). Physiotherapy programme reduces fatigue in patients with advanced cancer receiving palliative care: randomised controlled trial. Support Care Cancer. 25: 2899-2908. Available at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5527074/
- Bernabeu-Wittel, M., Moreno-Gavino, L., Nieto-Martin, D., Lanseros-Tenllado, J., Saenz-Santamaria, A., Martinez-Perez, O., Aguilera-Gonzalez, C., Pereora-Dominguez, M., Ollero-Batureonw, M., & FISEA-Project Team (2021). Physiotherapy in palliative medicine: patient and caregiver wellness. BMJ Supportive & Palliative Care. 13: e197-e204. Available at: https://spcare.bmj.com/content/13/e1/e197.responses
- Physiotherapists - Allied Health and Palliative Care - Allied Health. (2018). Caresearch.com.au. https://www.caresearch.com.au/Health-Professionals/Allied-Health/Allied-Health-and-Palliative-Care/Physiotherapists
- Agarwal, R., & Epstein, A.S. (2018). Advance Care Planning and End-of-Life Decision Making for Patients with Cancer. Seminars in Oncology Nursing. 34 (3): 316-326. Available at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6156999/
- Dinescu, A. (2021). Advance Care Planning. Clinics in Geriatric Medicine, (37). http://dx.doi.org/10.1016/j.cger.2021.06.001
- Myers, J., Cosby, R., Gzik, D., Harle, I., Harrold, D., Incardona, N., & Walton, T. (2018). Provider Tools for Advance Care Planning and Goals of Care Discussions: A Systematic Review. American Journal of Hospice & Palliative Medicine. 35(8):1123-1132. doi: 10.1177/1049909118760303.
- Silvester, W., Parslow, R. A., Lewis, V.J.,Fullam, R. S., Sjanta, R., Jackson, L. White, V. & Hudson, R. (2013). Development and evaluation of an aged care specific Advance Care Plan. BMJ Supportive & Palliative Care.3:188-195. Available at: https://spcare.bmj.com/content/3/2/188.long
- Brose, J. M., Willis, E., & Morgan, D. D. (2023). The intentional pursuit of everyday life while dying: A longitudinal qualitative study of working-aged adults living with advanced cancer. Palliative Medicine, 02692163231180911.
- Campbell, K. L., Cormie, P., Weller, S., Alibhai, S. M., Bolam, K. A., Campbell, A., ... & Goulart, J. (2022). Exercise recommendation for people with bone metastases: expert consensus for health care providers and exercise professionals. JCO oncology practice, 18(5), e697-e709.
- Physiotherapists - Allied Health and Palliative Care - Allied Health. (2018). Caresearch.com.au. https://www.caresearch.com.au/Health-Professionals/Allied-Health/Allied-Health-and-Palliative-Care/Physiotherapists
- Eyigor, S. (2014). Is exercise ignored in palliative cancer patients? World Journal of Clinical Oncology, 5(3), 554. https://doi.org/10.5306/wjco.v5.i3.554
- Malcolm, L., Mein, G., Jones, A., Talbot-Rice, H., Maddocks, M., & Bristowe, K. (2016). Strength in numbers: patient experiences of group exercise within hospice palliative care. BMC Palliative Care, 15(1). https://doi.org/10.1186/s12904-016-0173-9
- Morishita, S., Nakano, J., Fu, J. B., & Tsuji, T. (2020). Physical exercise is safe and feasible in thrombocytopenic patients with hematologic malignancies: a narrative review. Hematology (Amsterdam, Netherlands), 25(1), 95–100. https://doi.org/10.1080/16078454.2020.1730556
- Palliative care service development guidelines - Palliative Care Australia. (2018, January). Palliative Care Australia. https://palliativecare.org.au/publication/quality/
- Queensland Health. (2019). Physical activity, Exercise and Heart Failure. Qld.gov.au. https://www.health.qld.gov.au/__data/assets/pdf_file/0042/987774/Physical-activity-and-heart-failure-for-internet.pdf
- Toohey, K., Chapman, M., Rushby, A. M., Urban, K., Ingham, G., & Singh, B. (2023). The effects of physical exercise in the palliative care phase for people with advanced cancer: a systematic review with meta-analysis. Journal of Cancer Survivorship, 17(2), 399-415
Physiotherapists can help with endometriosis
- Zondervan KT, Becker CM and Missmer SA (2020) Endometriosis, The New England Journal of Medicine, 382:1244–56
- Rowlands IJ, Abbott JA, Montgomery et al. (2021) Prevalence and incidence of endometriosis in Australian women: a data linkage cohort study. BJOG. 128:657–65.
- Taylor HS, Kotlyar AM and Flores VA (2021) Endometriosis is a chronic systemic disease: clinical challenges and novel innovations, The Lancet, 397:839–52, doi.org/10.1016/s0140-6736(21)00389-5
- Armour M, Sinclair J, Ng CHM, et al (2020) Endometriosis and chronic pelvic pain have similar impact on women, but time to diagnosis is decreasing: an Australian survey. Scientific Reports 10:16253
- Hsu AL, Sinaii N, Segars J, Nieman LK et al. (2011) Relating Pelvic Pain Location to Surgical Findings of Endometriosis. Obstet Gynecol. 201, 118(2 Pt 1), 223–230.
- Engler et al. (2023) EAU Guidelines on Chronic Pelvic Pain. Accessed online https://uroweb.org/guideline/chronic-pelvic-pain/
- Yong PJ, Williams C, Behaiwy MA and Allaire C. (2020) A Proposed Platform for Phenotyping Endometriosis-Associated Pain: Unifying Peripheral and Central Pain Mechanisms. Current Obstetrics and Gynecology Reports. 9:89-97
- McNamara HC, Frawley HC, Donoghue JF et al. (2021) Peripheral, Central, and Cross Sensitization in Endometriosis-Associated Pain and Comorbid Pain Syndromes: Frontiers in Reproductive Health.
- Maddern J, Grundy L, Castro J and Brierley SM (2020) Pain in Endometriosis. Front Cell Neurosci
- Zheng P, Zhang W, Leng J and Lang J. (2019) Research on central sensitization of endometriosis-associated pain: a systematic review of the literature. Journal of Pain Research. 12: 1447-1456
- Nijs J, George SZ, Clauw DJ, Fernández-de-las-Peñas C, Kosek E, Ickmans K et al. (2021) Central sensitisation in chronic pain conditions: latest discoveries and their potential for precision medicine. Lancet Rheumatol 3:e383-92
- Frawley H & Peterson K (2022) Physiotherapy for Endometriosis. Global library of women’s medicine ISSN: 1756-2228
- Fraga MV, et al. (2021) Pelvic floor muscle dysfunctions in women with deep infiltrative endometriosis: An underestimated association. Int J Clin Prac;75(8):e14350.
- Frawley H et al (2021) An International Continence Society (ICS) Report on the Terminology for Pelvic Floor Muscle Assessment. Neurourol Urodyn.
- McPeak AE, et al. (2018) Pain Catastrophizing and Pain Health-Related Quality-of-Life in Endometriosis. Clin J Pain;34(4):349–56
- Lamvu G, et al. Chronic Pelvic Pain in Women: A Review. JAMA 2021;325(23):2381–91.
- Tirlapur SA, Kuhrt K, Chaliha C, Ball E, Meads C, Khan KS. (2013) The ‘evil twin syndrome’ in chronic pelvic pain: a systematic review of prevalence studies of bladder pain syndrome and endometriosis. Int J Surg.
- Cheng C, Rosamilia A, Healey M. (2012) Diagnosis of interstitial cystitis/bladder pain syndrome in women with chronic pelvic pain: a prospective observational study. Int Urogynecol J.
- Schomacker ML, Hansen KE, Ramlau-Hansen CH, Forman A. (2018) Is endometriosis associated with irritable bowel syndrome? A cross-sectional study. Eur J Obstetr Gynecol Reprod Biol.
- Graziottin A, Murina F, Gambini D, Taraborrelli S, Gardella B, Campo M. (2020) Vulvar pain: the revealing scenario of leading comorbidities in 1183 cases. Eur J Obstetr Gynecol Reprod Biol.
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