References for May 2024

 

References for May 2024

 

5 Facts about palliative care in aged care

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  1. Centre for Health Economics Research and Evaluation (CHERE). 2018. Palliative care in residential aged care: Identifying and funding palliative care needs in Australia. Available: https://www.uts.edu.au/sites/default/files/2020-04/ELDAC_report_1.pdf
  2. Galekop, M., M., J., Dijk, H. M. V., Exel, J., V., and Cramm, J. M. 2019. Views of professioinals and volunteers in palliative care on patient-centred care: a Q-methodology study in the Netherlands, BMC Palliative Care, 18 (97)
  3. World Health Organisation (WHO). 2020. Pallliative Care, Available: https://www.who.int/news-room/fact-sheets/detail/palliative-care
  4. Mitra, S., Vadivelu, N. (2013). Multidisciplinary Approach and Coordination of Care. In: Vadivelu, N., Kaye, A., Berger, J. (eds) Essentials of Palliative Care. Springer, New York, NY. https://doi.org/ 10.1007/978-1-4614-5164-8_2
  5. Hui, D., Hannon, B.L., Zimmermann, C. and Bruera, E. (2018), Improving patient and caregiver outcomes in oncology: Team-based, timely, and targeted palliative care. CA: A Cancer Journal for Clinicians, 68: 356-376. https://doi.org/10.3322/caac.21490
  6. Vissers, K., Brand, M., Jacobs, J., Groot, M., Veldhoven, C., Verhagen, C., Hasselaar, J., Engels, Y. (2012). Palliative Medicine Update: A Multidisciplinary Approach. In: The Authors Pain Practice. 2012 World Institute of Pain. https://doi.org/10.1111/papr.12025
  7. Victorian Government. (2016). Victoria’s end of life and palliative care framework. A guide for high-quality end of life care for all Victorians. Department of Health. Available at: hyyps:// www2.health.vic.gov.au/palliative-car
  8. Brett, L., Ilhan, E. The type and scope of physiotherapy is under-utilised in Australian residential aged care facilities: a national, cross-sectional survey of physiotherapists. BMC Geriatr 22, 625 (2022). https://doi-org.ezproxy.library.sydney.edu.au/10.1186/s12877-022-03248-4
  9. Navarro-Meléndez, A., Gimenez, M., Robledo-Donascimento, Y. et al. Physiotherapy applied to palliative care patients: a descriptive practice-based study. BMC Palliat Care 22, 99 (2023). https://doi-org.ezproxy.library.sydney.edu.au/10.1186/s12904-023-01188-3
  10. Carson K, McIlfatrick S. More than Physical Function? Exploring Physiotherapists’ Experiences in Delivering Rehabilitation to Patients Requiring Palliative Care in the Community Setting. Journal of Palliative Care. 2013;29(1):36-44. doi:10.1177/082585971302900106
  11. Pyszora, A., Budzynski, J., Wojcik, A., Prokop, A., & Krajnik, M. (2017). Physiotherapy programme reduces fatigue in patients with advanced cancer receiving palliative care: randomised controlled trial. Support Care Cancer. 25: 2899-2908. Available at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5527074/
  12. Bernabeu-Wittel, M., Moreno-Gavino, L., Nieto-Martin, D., Lanseros-Tenllado, J., Saenz-Santamaria, A., Martinez-Perez, O., Aguilera-Gonzalez, C., Pereora-Dominguez, M., Ollero-Batureonw, M., & FISEA-Project Team (2021). Physiotherapy in palliative medicine: patient and caregiver wellness. BMJ Supportive & Palliative Care. 13: e197-e204. Available at: https://spcare.bmj.com/content/13/e1/e197.responses
  13. Physiotherapists - Allied Health and Palliative Care - Allied Health. (2018). Caresearch.com.au. https://www.caresearch.com.au/Health-Professionals/Allied-Health/Allied-Health-and-Palliative-Care/Physiotherapists
  14. Agarwal, R., & Epstein, A.S. (2018). Advance Care Planning and End-of-Life Decision Making for Patients with Cancer. Seminars in Oncology Nursing. 34 (3): 316-326. Available at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6156999/
  15. Dinescu, A. (2021). Advance Care Planning. Clinics in Geriatric Medicine, (37). http://dx.doi.org/10.1016/j.cger.2021.06.001
  16. Myers, J., Cosby, R., Gzik, D., Harle, I., Harrold, D., Incardona, N., & Walton, T. (2018). Provider Tools for Advance Care Planning and Goals of Care Discussions: A Systematic Review. American Journal of Hospice & Palliative Medicine. 35(8):1123-1132. doi: 10.1177/1049909118760303.
  17. Silvester, W., Parslow, R. A., Lewis, V.J.,Fullam, R. S., Sjanta, R., Jackson, L. White, V. & Hudson, R. (2013). Development and evaluation of an aged care specific Advance Care Plan. BMJ Supportive & Palliative Care.3:188-195. Available at: https://spcare.bmj.com/content/3/2/188.long
  18. Brose, J. M., Willis, E., & Morgan, D. D. (2023). The intentional pursuit of everyday life while dying: A longitudinal qualitative study of working-aged adults living with advanced cancer. Palliative Medicine, 02692163231180911.
  19. Campbell, K. L., Cormie, P., Weller, S., Alibhai, S. M., Bolam, K. A., Campbell, A., ... & Goulart, J. (2022). Exercise recommendation for people with bone metastases: expert consensus for health care providers and exercise professionals. JCO oncology practice, 18(5), e697-e709.
  20. Physiotherapists - Allied Health and Palliative Care - Allied Health. (2018). Caresearch.com.au. https://www.caresearch.com.au/Health-Professionals/Allied-Health/Allied-Health-and-Palliative-Care/Physiotherapists
  21. Eyigor, S. (2014). Is exercise ignored in palliative cancer patients? World Journal of Clinical Oncology, 5(3), 554. https://doi.org/10.5306/wjco.v5.i3.554
  22. Malcolm, L., Mein, G., Jones, A., Talbot-Rice, H., Maddocks, M., & Bristowe, K. (2016). Strength in numbers: patient experiences of group exercise within hospice palliative care. BMC Palliative Care, 15(1). https://doi.org/10.1186/s12904-016-0173-9
  23. Morishita, S., Nakano, J., Fu, J. B., & Tsuji, T. (2020). Physical exercise is safe and feasible in thrombocytopenic patients with hematologic malignancies: a narrative review. Hematology (Amsterdam, Netherlands), 25(1), 95–100. https://doi.org/10.1080/16078454.2020.1730556
  24. Palliative care service development guidelines - Palliative Care Australia. (2018, January). Palliative Care Australia. https://palliativecare.org.au/publication/quality/
  25. Queensland Health. (2019). Physical activity, Exercise and Heart Failure. Qld.gov.au. https://www.health.qld.gov.au/__data/assets/pdf_file/0042/987774/Physical-activity-and-heart-failure-for-internet.pdf
  26. Toohey, K., Chapman, M., Rushby, A. M., Urban, K., Ingham, G., & Singh, B. (2023). The effects of physical exercise in the palliative care phase for people with advanced cancer: a systematic review with meta-analysis. Journal of Cancer Survivorship, 17(2), 399-415

Physiotherapists can help with endometriosis

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  1. Zondervan KT, Becker CM and Missmer SA (2020) Endometriosis, The New England Journal of Medicine, 382:1244–56
  2. Rowlands IJ, Abbott JA, Montgomery et al. (2021) Prevalence and incidence of endometriosis in Australian women: a data linkage cohort study. BJOG. 128:657–65.
  3. Taylor HS, Kotlyar AM and Flores VA (2021) Endometriosis is a chronic systemic disease: clinical challenges and novel innovations, The Lancet, 397:839–52, doi.org/10.1016/s0140-6736(21)00389-5
  4. Armour M, Sinclair J, Ng CHM, et al (2020) Endometriosis and chronic pelvic pain have similar impact on women, but time to diagnosis is decreasing: an Australian survey. Scientific Reports 10:16253
  5. Hsu AL, Sinaii N, Segars J, Nieman LK et al. (2011) Relating Pelvic Pain Location to Surgical Findings of Endometriosis. Obstet Gynecol. 201, 118(2 Pt 1), 223–230.
  6. Engler et al. (2023) EAU Guidelines on Chronic Pelvic Pain. Accessed online https://uroweb.org/guideline/chronic-pelvic-pain/
  7. Yong PJ, Williams C, Behaiwy MA and Allaire C. (2020) A Proposed Platform for Phenotyping Endometriosis-Associated Pain: Unifying Peripheral and Central Pain Mechanisms. Current Obstetrics and Gynecology Reports. 9:89-97
  8. McNamara HC, Frawley HC, Donoghue JF et al. (2021) Peripheral, Central, and Cross Sensitization in Endometriosis-Associated Pain and Comorbid Pain Syndromes: Frontiers in Reproductive Health.
  9. Maddern J, Grundy L, Castro J and Brierley SM (2020) Pain in Endometriosis. Front Cell Neurosci
  10. Zheng P, Zhang W, Leng J and Lang J. (2019) Research on central sensitization of endometriosis-associated pain: a systematic review of the literature. Journal of Pain Research. 12: 1447-1456
  11. Nijs J, George SZ, Clauw DJ, Fernández-de-las-Peñas C, Kosek E, Ickmans K et al. (2021) Central sensitisation in chronic pain conditions: latest discoveries and their potential for precision medicine. Lancet Rheumatol 3:e383-92
  12. Frawley H & Peterson K (2022) Physiotherapy for Endometriosis. Global library of women’s medicine ISSN: 1756-2228
  13. Fraga MV, et al. (2021) Pelvic floor muscle dysfunctions in women with deep infiltrative endometriosis: An underestimated association. Int J Clin Prac;75(8):e14350.
  14. Frawley H et al (2021) An International Continence Society (ICS) Report on the Terminology for Pelvic Floor Muscle Assessment. Neurourol Urodyn.
  15. McPeak AE, et al. (2018) Pain Catastrophizing and Pain Health-Related Quality-of-Life in Endometriosis. Clin J Pain;34(4):349–56
  16. Lamvu G, et al. Chronic Pelvic Pain in Women: A Review. JAMA 2021;325(23):2381–91.
  17. Tirlapur SA, Kuhrt K, Chaliha C, Ball E, Meads C, Khan KS. (2013) The ‘evil twin syndrome’ in chronic pelvic pain: a systematic review of prevalence studies of bladder pain syndrome and endometriosis. Int J Surg.
  18. Cheng C, Rosamilia A, Healey M. (2012) Diagnosis of interstitial cystitis/bladder pain syndrome in women with chronic pelvic pain: a prospective observational study. Int Urogynecol J.
  19. Schomacker ML, Hansen KE, Ramlau-Hansen CH, Forman A. (2018) Is endometriosis associated with irritable bowel syndrome? A cross-sectional study. Eur J Obstetr Gynecol Reprod Biol.
  20. Graziottin A, Murina F, Gambini D, Taraborrelli S, Gardella B, Campo M. (2020) Vulvar pain: the revealing scenario of leading comorbidities in 1183 cases. Eur J Obstetr Gynecol Reprod Biol.

 

 

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